EA: Ebsteins Anomaly Rare But Real


EA: Ebsteins Anomaly (Rare But Real)

I am very familiar with EA, which is the abbreviation for Ebstein’s Anomaly. My knowledge on EA is the result of having my son being born with it.

It is not something that can develop later, it is congenital, which means that a person is either born with it or not. EA occurs during the formation period of the heart.

In many cases, it isn’t diagnosed at birth and are most likely a mild malformation. The definition in layman’s terms is that it is a malformation in the tricuspid valve, which separates the right sides’ atrium and ventricle/top and bottom.

Ebstein’s Anomaly is diagnosed on a scale of mild to severe, depending on degree of malformation. Below is a diagram of a “normal” heart, showing correct blood flow.
heart diagram with flow
As you can see, the right side of the heart is designed to take the used blood from the body to the lungs to be oxygenated. If the valve is malformed, it cannot fully handle the job.

Some EA patients don’t even know they have it until later in life and that would indicate that it is a mild malformation. For many of these EA patients, it will require only medication. In a moderate form of EA, the valve can be repaired by the cone procedure or can be replaced with a mechanical valve.

In severe EA cases, reconstruction and/or replacement are not options. This is the case for my son, Kyle. He was born just over 20 years ago and it has been one hell of a roller coaster ride. Below is a diagram of my sons’ heart after the Fontan procedure.

Fontan Heart
As you can see now, the blood is re-routed to bypass the right side of the heart. It comes from the body and is shot straight to the lungs via the pulmonary artery. It then comes back to the left side of the heart and it is pumped to the body.

The left side is doing all the work from this moment on, which can have a profound effect on the whole body. My son developed WPW, which is the abbreviation for Wolff-Parkinson White Syndrome. WPW is an electrical abnormality and can cause the patient to go into SVT, which is tachycardia.

Kyle has experienced heart rates above 200 bpm and, in couple of cases, given medication to stop his heart in hopes that it would reset itself. Crazy sounding but it has worked a couple of times now. It is scary for the both of us and Kyle describes it as just feeling weird. Sadly to say, there’s more. For instance, my son developed a DVT (blood clot in left leg) while on blood thinners.

It is a rough road but, well worth it all to have my son in my life everyday! I write this not only to inform, but also give hope to the many families that have to live with such a rare heart defect.

You will see many graphic things, things no one should ever see let alone endure. You will feel guilty, trying to find reasoning. You will hear others’ stories and, depending on the amount of time in the hospitals, empathize with them. Leaving you to feel guilty as they lose their child, or in my case, children.

The Intensive care Unit are pods of about 8 families. I say families because a couple behind me and my son lost their triplets one by one. It was awful. Didn’t want to leave my son, but felt so guilty because my baby is in serious but stable condition.

One thing that you will find hard to see is the children there alone. Ones you never see anyone visit. I personally wouldn’t leave Kyle, so afraid that I wouldn’t be there and him not make it.

He has surpassed the doctors expectations and he is still teaching them. Faith and technology combine are mind blowing!

Let’s Just De-Criminalize Marijuana


imageMarijuana is finally getting the right attention. This will be a blessing for many people. I still wonder why this naturally grown plant is considered a class 1 illegal substance. People hear that and they immediately view marijuana as a bad thing, when in fact it is better for someone than many prescription medications. Yet, it is on a list along with lethal handmade drugs. The only downfall to weed is the fact that most are grown by or in fields, leaving the plants open to pesticide spray. If it were to be removed from the Federal books, then it could be used just like all other herbal remedies. Individuals have tested this plant more than the government ever could. Hey Government, listen to your people!

 

To All My Followers


Boggledee is going to take a break. I would like to say, a short break, but a break is all I know at this time. I just don’t want any of my followers to wonder, “where did Boggledee go”, not saying you would. I’m rambling, that’s what Boggledee does.

I hope that when I return to my writing world, I will share much happier things with you all; so, don’t give up on Boggledee just yet.

Thank you all for your time on Boggledee.wordpress.com

SUICIDE: SELFISHNESS OR SELFLESSNESS? You Decide!


I believe there is some confusion or assumptions about suicide and suicidal thoughts. I am now 7 days in and I thought I could use this time to help others understand what someone goes thru during these times.

When someone is truly suicidal, they are feeling helpless, worthless, and hopeless. Unlike what Dr. Phil would like to think or assume. He and many others believe that person is being selfish if they take their own life. I don’t believe someone would want to kill themselves for selfish reasons like not getting what they want. I believe that is actually someone using what is called a “scare tactic”.

I say this, because I have actual experience with these thoughts. I didn’t hear about it and I didn’t learn about it in a classroom. I live IT.

And, just to put this out there, one of the worst things I’ve ever heard in those moments is that I’m dumb or stupid for even thinking of such a thing. Trust me…that doesn’t help at all! It’s not about being smart or dumb. I’m not wondering whether I’m right or wrong. I’m wondering whether I’m doing more harm than good. I’m an intelligent person, with a bachelor’s degree. Yet, I still contemplate suicide. I don’t want to think these things. These thoughts are not wanted nor chosen. It just comes on and is very overwhelming.

I am a manic bipolar with suicidal tendencies. I have been this way for over 30 years. Yes, the thoughts and feelings subside, if you’re strong enough to fight the urge. I have found that it is easier on everyone else if you hide these thoughts and feelings, and I think I just realized that it is easier on me if I hide it all.

I understand how confusing it can be for someone who has never experienced it. Just as confusing it is for me to imagine that most people never contemplate suicide. I have yet to figure out the solution or cure, you might say, but I have decided to not hide it so much. If not for me, then maybe the discussion can bring awareness on the subject.

So, I say to all my brothers and sisters out there…SPEAK up and let others in. If you’re afraid of bringing them down or making them worry…find someone else, anyone else. I found you and with the World Wide Web, you can find me too. Even if nobody is listening…SPEAK. It doesn’t take it away, but you become more aware of it.

And, I want to say one last thing about what Dr. Phil said about suicide being a selfish act. That statement made me angry, because I could not imagine a selfish person ever giving their LIFE for anything or anyone. That’s why they are called “selfish”, they think of none other than themselves.

Think about it this way, is it more selfish to want someone to live in misery for someone else’s sake? Or, someone who is willing to give their own life to spare others or even themselves. When someone commits suicide, there are always those to quickly call that person selfish for taking them away from them. Sounds like that is selfish. “You should live for me!” “You can’t kill yourself, it will hurt me and others around.” Sounds selfish to me.

So, Dr. Phil and everyone else out there that thinks someone commits suicide for selfish reasons, you’re wrong.

It’s Been A While


Yes, it has been a long time since my last post. I guess I didn’t really worry about it because I am not famous or anything and really who cares what I have to say?

I have found myself struggling. It’s an internal struggle and it has become overwhelming. I’m lost. I’m tired. I’m weak. And, I’m over it.

Why do I even do this? I know. I do this, this writing here, because I know my misery or sadness will not bother any of you. Why do I know this? Because I really don’t know you and you really don’t know me, so there is really nothing vested in this. Other than maybe a release for me.

I put on this mask of illusion for everyone around me. My friends, my family all hear the same thing…I’m fine. But, I’m not. I haven’t been fine in a long time. I worry everyday. I zombie clean. My mind is always consumed with something. I can’t even sleep a whole night due to dreaming so much, I wake up soaked and have to change my entire outfit. Which surprisingly is only panties and a tank. This happens every night and doesn’t make any sense because I am so thin, that I am always freezing.

I know I am on the downward spiral of bipolar mania and it sucks. The upside…there is an upswing to it. Those are the best days…the high of bipolar. If only it would last.

I want to cry for no reason or I go to bed fine and wake up angry. How does that happen? What is wrong with my brain?

Gulliver’s Travels-Review


Gulliver’s Travels was written by Jonathon Swift in 1726.  I found a hardback version by Jonathon Swift, published in 1912.  I did read quite a bit of it, but decided to view the film instead; due to the limited amount of visuals in the book.  Although the author uses descriptive and imaginative words, I prefer to view a film versus reading the book.  I seem to relax a little too much while reading and end up asleep.  The following is an overview of the film “Gulliver’s Travels”.

Gulliver’s Travels. 1996. Jonathon Swift/Charles Sturridge. Lions Gate.

UPC: 707729101864

Story Summary:  This story is about Lemuel Gulliver, a doctor that boarded a ship on a journey.  The boat capsized and Lemuel found himself in strange worlds as he finds his way back home in England.   When he gets back, he begins to tell everyone about the places he had been and he is committed to an asylum for taking crazy.  He tells of a land of miniature people, having miniature kingdoms, trees, and animals.  He tells of a land of giants, where he was the miniature one and tales of a floating city.  Within these tales are historical facts and references, for example in every place Lemuel visits there are kings, queens, princes, and the royal court.  But, culturally there were many differences, raising the curiosity of neighboring lands.  The whole time Lemuel tells about his journeys he has only one believer, his son.

Issues Addressed:  The message in this story is to never let go of your imagination.  As children, we are more apt to tap into our imagination and relate to a fantasy world and I believe that is why he had the faith of his son.  I did notice a large amount of similarities between the places he had been and our own world; including war, technology, and fear for survival in these fantasy worlds.  But, within each individual place was reality.  It was full of the same pleasures, fears, and beliefs as our own world.  The only time where Lemuel was the same size of the rest was in the intellectual world and the magical world.  The other places were only fantasy because Lemuel was of opposite size than the others.

Age Level:  I would recommend this film to all ages, due to the joining of reality and fantasy.  I think it is natural to wonder “what if” and it is fun when it seems to come to life right before our eyes.  A good author can do this with mere words and when put into imagination or film, it comes to life.

Activities for Sharing:  I think it would be fun to watch the film and find the history words in each world Lemuel visits.  For example, king, queen, royal court, Alexander the Great, Roman Emperors, etc…

Rational Choice Theory


The rational choice theory is one of many criminological theories. Larry Siegel, a professor of Criminal Justice for over 40 years, defines criminology as “the study of the nature, extent, cause, and control of criminal behavior.” Theories are then developed through observed crime patterns, including the trait theory, the psychological theories, and the rational choice theory. The rational choice theory is the one view of crime that has been most widely accepted throughout history.
It was an Italian social thinker, Cesare Beccaria, that developed the rational choice theory in the mid-eighteenth century. Cesare Beccaria, out to abolish cruel punishment, was one of the first scholars to develop a theory of why people commit criminal acts in universal terms and not religious terms. People viewed crime as a demonic act against society and the views’ only emphasis was on punishment for the criminal act and included no preventative aspect for solutions.
Classical criminology, according to Siegel, is the view that “people have free will to choose criminal or conventional behaviors, people choose to commit crime for reasons of greed or personal need, and that crime could be controlled only by the fear of criminal punishment.” Beccaria believed that people are rational thinkers and weigh risks against benefits when contemplating whether to commit a criminal act. Before the eighteenth century, the accused had almost no rights and Beccaria also believed that the punishment should fit the crime and pointed out flaws within our criminal justice system, prompting reform.
This theory brought about crime prevention, deterrence, incarceration, incapacitation and the most severe form of punishment adopted at this time was the death penalty. To prevent crime, rational choice theorists believed that criminals could be discouraged from criminal acts by increasing the effort needed to commit a crime, increasing the risk of committing crime, and reducing the rewards of crime. General deterrence came from the belief that people would not commit crimes if they feared the punishment for that criminal act. Believing that people are rational thinkers, Beccaria’s general deterrence theory was that the greater the severity, certainty, and speed of legal sanctions, the lower the crime rate would be. Specific deterrence, incarceration, and incapacitation are systems used on people who have already committed a criminal act, to keep them from committing future acts of crime. Specific deterrence is the view that criminal sanctions be so powerful that offenders will never repeat their criminal acts. Specific deterrence includes incarceration and incapacitation to keep known criminals out of society, reducing the crime rate by limiting opportunity to commit crime. This deterrence theory has brought about changes in criminal policies and laws, which has benefits as well as costs.
The benefit can sometimes become very expensive for taxpayers. For example, to prevent crime there would be the need to increase patrol and/or create preventative programs and will in turn increase taxes. Prevention also comes in the form of better lighting for dark areas, cameras, and monitors which again requires funding. Prevention is as simple as keeping valuables out of sight and marking them for future detection, costing nothing. All of these prevention methods do have beneficial results in lowering crime in high rate areas, but other areas are then affected by diffusion. Diffusion is when the criminal seeks an easier place or the offender goes on to commit a different type of crime. The benefits of these deterrent methods are keeping society safe by detaining and/or monitoring known criminals. However, the costs of these methods are extremely high. To detain a person in jail or prison consists of housing, education, health, and food expenses for each one incarcerated. This increases the load on taxpayers, leaving society to foot the bill for crimes committed by others.
The rational choice theory explains the reasoning behind most criminal acts, but does not explain why a person would commit a criminal act while walking in their sleep or while in the heat of the moment. This is due to the fact that rational thinking cannot be done at these times. The rational choice theory differs from the trait theory or the biological theories, in which these two theories state that there is an inherited trait or a biological makeup, making people commit crimes. The trait theory and the biological theory, based on physical aspects, tried to detect criminally apt people to prevent crime. These two theories claim that the person has no control and cannot help themselves, having an uncontrollable urge to commit crime. However, these theories cannot explain why someone without the traits or biological make-up would commit a criminal act. The rational choice theory is effective in explaining the reasons for crime and provides solutions. Ronald Akers states, “Rational choice has inspired some empirical work on decision making in specific crime and crime events as well as in criminal justice policy, both of which were projects that might not otherwise have been done.”
The rational choice theory was developed within the classical criminology view. “These classical ideas declined in the nineteenth century, partly because of the rise of science and partly because its principles did not take into account differences among people nor the way the crime was committed” according to George Cole. After about a hundred years and a few theories later, classical criminology took a new life when scholars argued that although crimes may result from rational thinking, differences among people cannot be overlooked. This theory is still the most widely accepted theory of criminology today.

Sources

Akers, Ronald. (1990). The Journal of Criminal Law and Criminology (1973-)
Vol. 81, No. 3 , pp. 653-676, Northwestern University. Retrieved Dec. 5, 2010, from JSTOR database. http://www.jstor.org/stable/1143850

Cole, George & Smith, Christopher. (2011). Criminal Justice In America. Belmont: Wadsworth.

Siegel, Larry. (2011). Criminology: The Core. Belmont: Wadworth.

Siegel, Larry & Senna, Joseph. (2009). Introduction To Criminal Justice. Belmont: Wadsworth.